Skeletons in the Closet

IMG_2792.jpgOne evening this past weekend I watched the indie movie “To the Bone” (2017) which deals with the topic of eating disorders, particularly anorexia nervosa—with the highest mortality rate of any mental illness. People waste away, become skeletal like concentration camp victims, and literally starve themselves to death. Unless, that is, they are fortunate enough to be able to access effective and compassionate health care and recover from this devastating illness. As does the 20-year old lead character in “To the Bon,” Ellen, as well as the actress, Lily Collins, who plays her in the movie—and as does the writer/producer of the movie, Marti Noxon. Both Collins and Noxon have struggled with anorexia and Noxon based the screenplay on her own experience.

I had read about some of the controversy surrounding this film, including critique that it glorifies thinness and eating disorders in general, as well as that it can tigger viewers into a recurrence or worsening of their own anorexia. Although I am not in favor of the over-use of trigger warnings, I did feel that the brief written warning at the beginning of the movie was tasteful and appropriate. As I remember, it stated something like “The following movie includes content that some viewers may find difficult to watch.”

Having lived through anorexia as a teenager, and having provided primary health care to many young people struggling with eating disorders (and across the socio-economic spectrum), I can say that “To the Bone” is an honest, nuanced, and not overly-sensationalized depiction of the lived experience of eating disorders. The movie does not glamorize thinness or eating disorders. It appropriately alludes to the linkage between eating disorders and childhood trauma, including sexual abuse. The supposedly unconventional heroic physician in the film, Dr. William Beckham, played by Keanu Reeves, is borderline obnoxious in that Robin Williams ah-shucks smiley face sort of way. And the group home eating disorder treatment center where the main character Ellen goes in a last-ditch effort to find a cure, is a gorgeous and expensive-looking setting. It helps that Ellen’s elusive father (he never appears in the movie even for a family therapy session) is portrayed as having a well-paying job in order to pay for that group home inpatient therapy. Even patients with relatively comprehensive health insurance often have difficulty accessing such treatment for eating disorders.

My assessment is that “To the Bone” is a good and honest film about an important mental health issue, and it is written/produced by a woman and features mostly women in the leading roles (luckily, Reeves has relatively little screen time). I can see this film being used effectively in nursing and other health professions educational programs for many years to come.

  • A good resource for more information on eating disorders (including a toll-free, confidential help-line) is the National Eating Disorders Association.
  • And about that actual skeleton in the closet included in this post… It is a human (not plastic) skeleton enclosed in its own wooden closet on wheels and is located in the University of Washington School of Nursing’s new simulation/learning lab. I took her photograph last week and am currently trying to discover anything more about who she was.

U.S. Healthcare (Politics) is Bad for Your Health

FullSizeRenderThat U.S. healthcare is bad for your health is something that is well-documented yet not widely known. Last year, researchers from Johns Hopkins University published the British Medical Journal article “Medical error—the third leading cause of death in the US.” Yes, that is correct. The top three leading causes of death in the U.S. are (in order): 1) heart disease, 2) cancer, and 3) medical error—death resulting from medical/health care itself.

But lately it occurs to me that U.S. healthcare politics is bad for our collective health as well. Especially the current state of healthcare politics being bashed around by the U.S. Senate Republicans with their widely unpopular American Heath Care Act—now called the Better Care Reconciliation Act, but also referred to as Trumpcare. The latest estimates are that 22 million Americans would lose health insurance under the Republican Senate health bill.

Last night I attended the town hall meeting on health care by U.S. Senator from Washington State Maria Cantwell, held at the University of Washington. It was her first town hall meeting in many years and was well-attended with a packed lecture hall of 600 or so people. The vast majority of audience members were older (than I am) white people, and from the questions they asked (and the occasional heckling), most were way left of center and perhaps even left of left. There were several social workers and mental health therapists who spoke about the increase in anxiety and depression among their clients/patients over the Republican move to repeal and replace the Affordable Care Act. Talbots-wearing middle-aged white women spoke of their sons being affected by the current opioid epidemic (and at least one of which was introduced to opioids by a hospital stay), and about their young adult daughters getting IUDs placed by Planned Parenthood—not because they currently needed them, but because of their fears of losing access to birth control.

The questions and comments from participants of the town hall health care meeting were tightly controlled by a lottery system, with Dr. Paul Ramsey, CEO of UW Medicine and Dean of the UW School of Medicine serving as moderator. Senator Cantwell’s responses were, well, predictable and politically-calculated, but then that is to be expected.

The most powerful part of the evening came from an African-American older man standing in the balcony area, holding a hand-made small sign, who spoke out passionately about how no one was talking about the Black Lives Matter issues, and said he was currently homeless, living on the streets near the University of Washington, and had a hard time getting access to mental health treatment. He spoke ‘out of turn,’ not having a lottery ticket number called. He was flanked by two police officers who, thankfully, allowed him to speak. Some audience members tried to silence the man, and at least one media/reporter in front of me took photographs of the man while he (the reporter that is) laughed. Curiously enough (or not), none of the media outlets reporting on this town hall meeting gave any mention at all of his comments.

Democracy is messy, and so is our healthcare (political) system.

Is health care a right or a privilege, and why? That is a question I asked a class of nursing students today. It’s a good question for all of us to consider. And, as one of my students pointed out today, really pay attention to that ‘why?’ at the end. Whatever our political and other beliefs, we need to question our own assumptions.

Speak out. And, for those of you with summertime reflective writing time to be had, I highly recommend you write and submit a 40-400 prose piece on the topic of Healthcare On the Line to Pulse: Voices from the Heart of Medicine.  

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Stealing Stories

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Kris W. “Wall of Distraction” Photograph on canvas. 2011—Youth in Focus/ On display at the UW School of Social Work, Seattle

The commodification and co-optation of stories—of individuals and communities—is something I have been thinking about lately at both a personal and professional level. Personal, as I reflect on the various critiques of my medical memoir, Catching Homelessness: A Nurse’s Story of Falling Through the Safety Net (Berkeley: She Writes Press, 2016). And professional, as I walk through the medical center where I work and notice the larger-than-life patient testimonials (read: advertisements) for the medical care they have received—and read the various gut-wrenching personal stories of people who will be adversely affected by the current Republican-led efforts to “reform” our healthcare system.

In addition, I am thinking about this issue as I finish final writing and editing of my next book manuscript, Soul Stories: Voices from the Margins. The following is an excerpt from the chapter/essay “The Body Remembers”:

“Telling the story of trauma—of survival—may have the capacity for at least aiding in healing at the individual level, but then there is the added danger, once shared, of it being appropriated and misused by more powerful political or fundraising causes. Stories can be stolen. Arthur Frank calls these hijacked narratives. “Telling one’s own story is good, but it is never inherently good, and the story is never entirely one’s own.”

An intriguing example of a stolen story is the one included in Rebecca Skloot’s narrative nonfiction book The Immortal Life of Henrietta Lacks, which tells the story of the “stolen” cervical cancer cells from an impoverished and poorly educated black woman in Baltimore in the 1950s—cells that scientists at Johns Hopkins University Hospital subsequently profited from through the culturing and selling of HeLa cells—cells which killed Henrietta Lacks and cells which neither she nor her family members consented to being used and profited from. Skloot, a highly educated white woman, has profited from the use of the Lacks’ family story, although she has set up a scholarship fund for the Lacks’ family members. I am reminded of the proverb that Vanessa Northington Gamble shares in her moving essay, “Subcutaneous Scars,” about her experience of racism as a black physician. Dr. Gamble’s grandmother, a poor black woman in Philadelphia, used to admonish her, “The three most important things that you own in this world are your name, your word, and your story. Be careful who you tell your story to.”  (From “Subcutaneous Scars” Narrative Matters, Health Affairs, 2000, 19(1):164-169.)

  • See also my previous blog post “The Commodification and Co-optation of Patient Narratives” from February 11, 2011. Re-reading this blog post, I remembered that it was deemed too controversial and critical by a university librarian to include on our narrative medicine university-sponsored blog site (now inactive—the library blog, not the librarian).

Summer Reading Challenge: Global to Local

FullSizeRender 2For my third annual summer reading challenge list of books with a social justice slant, I’ve decided to focus on global to local from my Pacific Northwest (Seattle) corner of the country. These are all excellent books to read no matter where you happen to live. Here they are from the top of the pile working down:

 

My Ode to Hospital Chaplains

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Here is my “Perspective” on hospital chaplains and health humanities, published in the most recent issue of the Journal of Medical Humanities. The photo above is of a sketch I made of the “park bench individual” included in my poem “Waiting” included in the brief article.

Perspective

Josephine Ensign (1,2,3)

Now, thirty-two years after graduating from the Medical College of Virginia/Virginia Commonwealth University School of Nursing (BS ‘84) in my hometown of Richmond, I can safely say that the single most important course I took in nursing school was not in nursing. Rather, it was a health humanities and medical ethics course taught in the School of Medicine by a hospital chaplain, Reverend Bob Young. Reverend Bob focused this course on death and dying, and he used a small weekly seminar format with a literary reading and writing group. There were approximately ten students, all first- or second-year medical students, except for me. I was in my first year of undergraduate nursing school and was struggling to avoid both failing and dropping out. I despised nursing school with its antiquated emphasis on rote memorization and rigid hierarchical hospital practice. I vowed never ever to teach or to go near a nursing school again once I graduated.

Now (again), after twenty-one years teaching undergraduate nursing courses at the University of Washington in Seattle, I can safely say that Reverend Bob’s health humanities course is the single-most influential course on my own teaching and healthcare practice. For Reverend Bob’s health humanities course, we completed a final portfolio of poems and prose we had written over the semester as reflection on the course content and on our own personal and professional lives. At twenty-one years of age I wrote some overwrought poems, including one about a baby bird dying in my hands after it had been mauled by my dog. But I also wrote several poems that, if not good by MFA standards, are poems that have stayed with me and helped guide my hands, head, and heart over the many years since I wrote them. Like this one titled “Waiting”:

 

Sitting on park benches

Wringing their hands
Trying to forget the ill one inside

That hospital there.

The building you just stepped out of
The one you walk by every day
That structure has become a part of the skyline

Seen from the window of a dorm room.

It is a lab, a place to practice

The proper way to give drugs

To make beds
To become a nurse.

But reflected in the eyes of the park bench individuals

The building becomes
One room
One bed

One person

One fear

One hope.

Reverend Young gave me an A-plus for the course. But the grade doesn’t matter as much as the lasting solace his course has given me over the many years of my work as a nurse—and as a nurse educator. Thanks to all of the important hospital chaplains out there—no matter what their faith or spiritual persuasion. And thanks to everyone who works hard to put the human back in health care and in health professions education.

Josephine Ensign, FNP, MPH, DrPH
Associate Professor, University of Washington School of Nursing in Seattle
Affiliate Faculty, University of Washington Simpson Center for the Humanities,
Certificate Program in Public Scholarship
Medical College of Virginia/Virginia Commonwealth University School of Nursing (BS ’84)

1, 2

Josephine Ensign bjensign@uw.edu

School of Nursing, University of Washington, Seattle, Seattle, WA, USA

Certificate Program in Public Scholarship, University of Washington Simpson Center for the Humanities, Seattle, WA, USA

3
Richmond, VA, USA

School of Nursing (BS ‘84), Medical College of Virginia/Virginia Commonwealth University,

 

Open Access .This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.

Here is the link to the journal article: Ensign_j med hum

Going Public: Out of the Ivory Tower

IMG_4119Yesterday, I attended and was part of a timely all day workshop at the University of Washington Allen Library Research Commons, “Going Public: Sharing Research Beyond the Academy.” It was sponsored by the UW Libraries, College of the Environment, eScience Institute, and the Simpson Center for the Humanities/Public Scholarship program. Timely, of course, since science, climate change facts/efforts, the humanities (and arts), and even higher education in general are all under increasing attack in the United States.

The opening keynote speaker was Scott Montgomery, a geoscientist and lecturer in the UW Jackson School of International Studies and author of numerous books, including The Chicago Guide to Communicating Science (University of Chicago, 2003). For his talk, titled “A Story in 25 Images,” he practiced what he preaches by using PPT for showing a series of images to accompany a story (with a traditional narrative arc) of his journey as a communicator of science. Most of his images were abstract geology sorts of themes, but the ones that included human images portrayed only white men in suits. Yes, I was wearing my critical feminist academic bonnet, and yes, there were many women and persons of color in the audience. One young female attendee pointed out in the Q&A session that women within the academy face significant barriers, not just to entering science fields, but also to have non-traditional, public-facing and public-engaging scholarly work—barriers faced by men as well but to a lesser degree. And this is not only a gendered, but also a “minoritized” (her term and one that I like) issue.

The middle part of the day’s workshop consisted of panel discussions and break-out sessions focused on various issues of working with the media in all its varied forms—from TV and newspapers to podcasts, blogging, and other types of social media. I moderated a lunchtime round table discussion on academic freedom and public scholarship, two overlapping topics close to my heart. I didn’t share this in the session, but I have had to fight to defend my academic freedom in terms of this blog over its now seven year history. And public scholarship, such as what I do in my work on health and homelessness? It would seem that it is not deemed “nursing science,” whatever that term even means. But hopefully that is a cohort effect that will change for the better.

I was part of the final panel, “Navigating the Path from Research to Public Policy,” along with Dr. Simone Alin from UW Oceanography and NOAA; Washington State Senator Rueven Carlyle; Sally Clark, former Seattle City Councilmember and current Director, Regional and Community Relations, External Affairs at UW; and Tim Thomas, with the Urban@UW Homeless Initiative. The moderator’s question to the three of us panelists who are researchers was, “Can you tell us a little about how you’ve been involved in informing policy-making through your research.” Indeed, I can and I did, including a mention of my medical memoir, Catching Homelessness: A Nurse’s Story of Falling Through the Safety Net, which is research-informed and is written as a policy narrative—policy narrative being defined as ” a new genre of writing that explores health policy through the expression of personal experiences” by the editors of the Narrative Matters section of the health policy academic journal Health Affairs. Narrative Matters needs better inclusion from nurse writers, but that is another story for another day.

The Hospital on Profanity Hill

Version 2When Harborview Hospital in Seattle opened its doors to patients in 1931, advertising posters portrayed the striking fifteen-story Art Deco building as a shining beacon of light, the great creme-colored hope on the hill overlooking the small, provincial town clinging to the shores of Puget Sound. “Above the brightness of the sun: Service” is what one poster proclaimed; in the bright halo behind the drawing of the hospital, were the smiling faces of a female nurse and her contented-looking (and either sleeping or comatose) male patient with a bandaged head.1

Harborview Hospital—King County’s main public charity care hospital—was built at the top of Profanity Hill, on the site of the former King County Courthouse and jail. Profanity Hill got its name from the steep set of over 100 slippery-when-wet wooden stairs connecting downtown Seattle to the Courthouse. One wonders if it also got its name from being at the top of the original Skid Road—now named Yelser Way—where in the early days of Seattle, freshly felled logs, mixed with a considerable number of public inebriates, skidded downhill together into the mudflats of Puget Sound.2 The term ‘skid road’ soon became synonymous with urban areas populated by homeless and marginalized people.

Counties are the oldest local government entity in the Pacific Northwest, and King County, which includes the City of Seattle, was formed by the Oregon Territorial legislature in 1852. From the beginning, the King County Commissioners were responsible for such things as constructing and maintaining public buildings, collecting taxes, and supporting indigents, paupers, ill, insane, and homeless people living in the county.3 Seattle, with its deep-water shoreline and rich natural resources, was built on the timber and shipping industries, which soon attracted thousands of mostly single and impoverished men to work as laborers. These industries, mixed with ready access to alcohol in the always ‘wet town,’ led to high rates of injuries. Serious burns came from the growing piles of sawdust alongside log or wood-framed houses heated by wood fire and coal. Then there were the numerous Wild West shootings and stabbings. As in the rest of the country at that time, wealthier families took care of ill or injured family members in their own homes, with physician home visits for difficult cases. The less fortunate relied on the charity of local physicians and whatever shelter they could arrange.

David Swinson ‘Doc’ Maynard, one of Seattle’s white pioneer settlers, was Seattle’s first physician and, in a sense, he opened King County’s first charity care hospital, an indirect precursor of Harborview Hospital. A colorful and compassionate man, Doc Maynard built and operated a 2-bed wood-framed hospital facility in what was then called the Maynardtown district—now called Pioneer Square—a Red Light district full of saloons and ‘bawdyhouses.’ Although she had no formal training, Maynard’s second wife, Catherine, served as the hospital’s nurse. Their hospital, which opened in 1857, closed several years later, reportedly because Doc Maynard insisted on serving both Indian and white settlers. Also contributing to the hospital’s demise was the fact that Maynard disliked turning away patients who could not pay for his services. Around this same time, Doc Maynard assumed care for King County’s first recorded public ward: Edward Moore, “a non-resident lunatic pauper and crippled man.”2 The unfortunate patient had to have his frostbitten toes amputated, and then once healed, was given an early version of ‘Greyhound Therapy’ and shipped back East.

But the true roots of Harborview Hospital began in 1877 in the marshlands along the banks of the Duwamish River on the southern edge of Seattle. There, on an 80-acre tract of fertile hops-growing land, the King County Commissioners built a two-story almshouse, called the King County Poor Farm. They built the Poor Farm in order to fulfill their legislative mandate. Not wanting to run the Poor Farm themselves, they posted a newspaper advertisement asking for someone to take over operation of the King County Workhouse and Poor Farm, “to board, nurse, and care for the county poor.”4 In response, three stern-looking French-Canadian Sisters of Providence nurses arrived in Seattle by paddleboat from Portland, Oregon. The Sisters began operation of the 6-bed King County Hospital facility in early May 1877.

In their leather-bound patient ledgers, the Sisters of Providence recorded that their first patient was a 43-year-old man, a Norwegian laborer, a Protestant, admitted on May 19th and died at the hospital six weeks later. The Sisters carefully noted whether or not their patients were Catholic, and in their Chronicles, they recorded details of baptisms and deathbed conversions to Catholicism of their patients. The hospital run by the Sisters of Providence had a high patient mortality rate, but the majority of patients came to them seriously injured or ill. Also, this was before implementation of modern nursing care: the Bellevue Training School for Nurses in New York City, North America’s first nursing school based on the principles of Florence Nightingale, opened in 1873.

In their first year of operation, the Sisters realized that the combination of being located several miles away from the downtown core of Seattle and the unsavory name ‘Poor Farm’ was severely constraining their success as a hospital. So in July 1878 they moved to a new location at the corner of 5th and Madison Streets in the central core of Seattle, and they renamed their 10-patient facility Providence Hospital. The Sisters designated a night nurse to serve as a visiting/home health nurse and they accepted private-pay patients along with the indigent patients, whose care was paid for by King County taxpayers. The Sisters of Providence agreed to provide patients with liquor and medicine, both mainly in the form of whisky, a fact that likely helped them attract more patients.2

The Sisters’ list of patients included mainly loggers, miners, and sailors in the first few years, later mixing with hotelkeepers, fishermen, bar tenders, police officers, carpenters, and servants as the town grew in size. Many of their early patients were from Norway, Sweden, and Ireland, echoing the waves of immigrants entering the United States. Diagnoses recorded for patients included numerous injuries and infectious diseases—including cholera, typhoid, and smallpox—along with ‘whisky’ as a diagnosis, which later changed to ‘alcoholism.’ Their patient numbers grew, from just thirty hospital patients their first year, to close to two hundred patients by their fifth year of operation. The Sisters expanded their hospital to meet the increasing patient population.

Growing religious friction between the Catholic Sisters of Providence and the county’s mainly Protestant power elite, contributed to the King County Commissioners assuming responsibility for re-opening and running the King County Hospital in 1887. The King County patients were transferred from Providence Hospital back to the old Georgetown Poor Farm facility. Then, in 1906, the King County Hospital was expanded to a 225-bed facility at the Poor Farm site. It remained there until 1931 when the new 400-bed Harborview Hospital on Profanity Hill was opened. The old Georgetown facility, renamed King County Hospital Unit 2, was used as a convalescent and tuberculosis center until it was closed and demolished in 1956.5 The area where the King County Poor Farm was located is now a small park surrounded by an Interstate, industrial areas, and Boeing Field.

Harborview Hospital, now named Harborview Medical Center, still stands at the top of Profanity Hill, although the area is now officially called First Hill and nicknamed Pill Hill for the large number of medical centers now competing for both real estate and health care market share. Harborview Medical Center is owned by King County, and since 1967, the University of Washington has been contracted to provide the management and operations. Harborview Hospital has served as the main site for the region’s medical and nursing education. Since 1931, it has been the main tertiary-care training facility for the University of Washington’s School of Nursing.

Harborview Medical Center continues to fulfill its mission of providing quality health care to indigent, homeless, mentally ill, incarcerated, and non-English-speaking populations within King County. It is the largest hospital provider of charity care in Washington State. In addition, it serves as the only Level 1 adult and pediatric trauma and burn center, not only for Washington State, but also for Alaska, Montana, and Idaho, a landmass close to 250,000 square kilometers with a total population of ten million people. Harborview Medical Center has nationally recognized programs, including the pioneering Medic One pre-hospital emergency response system, the Sexual Assault Center, and Burn Center. In addition, Harborview provides free, professional medical interpreter services in over 80 languages, and has the innovative Community House Calls Program, a nurse-run program providing cultural mediation and advocacy for the area’s growing refugee and immigrant populations.

Harborview remains a shining beacon on Profanity Hill, rising above the skyscrapers of downtown Seattle. At night, it is literally the shining beacon on the hill, with blinking red lights directing rescue helicopters to its emergency heliport, built on top of an underground parking garage on the edge of the hill. Sharing space with Harborview’s helipad is the narrow strip of green grass of Harbor View Park, with commanding views of Mount Rainier to the south, and of downtown Seattle and Puget Sound to the west. In the wooded area below Harbor View Park, extending down to Yesler Way, along the old Skid Road, are blue tarps and tents of the hundreds of homeless people living in the shadows of the hospital. Construction is underway to add a new public park, mixed-income public housing, and a new—and hopefully less slippery—pedestrian walkway connecting downtown Seattle to the Hospital on Profanity Hill.

Note: This was published in the “Famous Hospitals” section of Hektoen International: A Journal of Medical Humanities in Spring 2015. Since researching and writing this essay, I have continued research (including conducting oral histories) for my project “Skid Road: The Intersection of Health and Homelessness.”

References:

  1. Seattle’s First Hill: King County Courthouse and Harborview Hospital. http://www.historylink.org/index.cfm?DisplayPage=output.cfm&file_Id=7038. Priscilla Long, curator. Published March 22, 2001. Accessed November 5, 2013.
  2. Morgan M. Skid Road: An Informal Portrait of Seattle. New York, NY: Viking Press; 1951.
  3. Reinartz KF. History of King County Government 1853-2002. http:your.kingcounty.gov/kc150/service.htm. Published July 31, 2002. Accessed December 12, 2014.
  4. Lucia E. Seattle’s Sisters of Providence: The Story of Providence Medical Center—Seattle’s First Hospital. http://providencearchives.contentdm.oclc.org/cdm/ref/collection/p15352coll7/id/1651. Published 1978. Accessed October 1, 2013.
  5. Sheridan M. Seattle Landmark Nomination Application—Harborview Hospital, Center Wing. http://www.seattle.gov/neighborhoods/preservation/lpbcurrentnom_harborviewmedicalcenternomtext.pdf. Published May 4, 2009. Accessed November 21, 2014.